My journey here isn’t just about tramping about, doing art and visiting family and friends. There was a separate mission that was the root of the timing of this trip. It was fundraiser to support awareness and research for a little known, but devastating disease that effects a small percentage of children called ataxia-telangiectasia. Only around 200 people in Britain have it. It is a rare, genetic degenerative disease of childhood, which effects multiple systems of the human body. Children are usually confined to a wheelchair by the age of 10. Another function of the event was to raise money for all terrain wheel chairs for a pair of 7 year old twin boys, Ruben and Zach. I have recently become friends with the twin’s lovely parents, Andy and Tania. I was pleased to see the goal for the wheelchairs was reached and the 5th Annual A-T Ball was a huge success all around. After donating a painting for their auction last year I was happy to donate another one this year. I was also happy to accept to the invitation to attend the ball given to me by my cousins Vaughn and Joanne Rawson. It was truly an honor to shed my scarecrow clothes and dress like James Bond for a day.
Good guys do wear black. Nice job all around.
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Worked for Johnny Cash!
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“Barnes, Arthur Barnes” No James here.
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